Have you been diagnosed with a "life-changing" disease?
PatientsLikeMe is a new, FREE site with the goal to enable people to share information that can improve the lives of patients diagnosed with life-changing diseases.
To make this happen, they've created a platform for collecting and sharing real world, outcome-based patient data (patientslikeme.com) and are establishing data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.
The site was inspired by a young carpenter named Stephen Heywood, who in 1998 was diagnosed with ALS.
The Heywood family began taking charge of Stephen's care, searching the world over for ideas that would extend his life and improve the way he lived.
This set in motion a series of events that have led to PatientsLikeMe, a new system of medicine by patients for patients.
Using the site, you can read all about the experiences of other real people who are afflicted with certain illnesses as well as share your own experiences. The purpose, then, is to allow users to interact with one another, track how treatments are working for other members, and explore the side effects patients are seeing with certain treatments.
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